Wednesday, February 3, 2010

A new year, A new hope 2/3/10

It is a new year and here are some new pictures. Kensley has come a long way since last Christmas. She and I had only been home from our stay in Omaha for 5 weeks. At that point my Mom-in-law and Mom had spent more time in my new house than I had. Wow! what a journey this has been. I can't say that it has been fun, but now I can see all the blessings, and all the things that I have a greater appreciation for. I have learned how essential forgiveness is, forgive yourself, forgive others, forget time and enjoy moments.

"> Yes, Kensley is in the dryer. She was helping me unload the clothes and as quick as a wink she crawled in herself. So, of course I grabbed the camera. The problem is that now every time I try to unload or load the dryer, Kensley wants to get in. Not the best idea.
We were fortunate to be able to take Kaydee and Cooper to the A&M vs. TU game on Thanksgiving. It was Cooper's first time in Kyle Field and as you can see, he was wide eyed the whole night. We had a great time with the kids and racked up some great memories.

We were dreaming of a White Christmas and we got it! There was about 8 to 10" on the ground and 4 foot drifts. Of course Kensley had to have labs drawn in the ER on Christmas Eve, but we all survived and enjoyed a simple and less hectic holiday.

The snow hung around for about a week, and Kensely and the kids played outside a lot.



Although our Christmas was filled with strep and double ear infections, the weeks that followed must have been followed by a growth spurt for Kensley. She ate and ate solid food as if she was normal. It was wonderful. Unfortunately it did not last and we are going through a slow eating period now. As I understand this is very normal for Short Gut kids.
We are currently trying soooooooo hard to get off of any kind of fluid therapy. We got down to giving her 100mls over 3 hours every night, then 100mls over 3 hours every other night, and now we are cold turkey. We have not had fluid for three nights, and we will find out next Monday (lab draws) if she handled the transition well. Please add this to your prayer list. We would love to be able to give Kensley a real bath, or to take her swimming this summer. It would be a dream come true.





4 comments:

Rick Whitesell said...

We will be praying!!!!!!!!! Great pictures.

miss amy said...

Lots of prayers coming your way! She is p.r.e.c.i.o.u.s. and looks wonderful! I will never forget the night I took her to surgery that last time, and look how far she's come. You guys have done an incredible job...thanks for sharing your story on here and for being so honest...you are an encouragement to so many! much love!

MamaMathis said...

Thought about you all last night, and so glad to see new pics when I checked your site this morning!!

You are incredible Tana! Everyone in your family is incredible! You are such an encouragement to many of us. I am definitely going to focus on "moments and not time"! You should write an inspirational book for moms on that one...seriously!! We will be praying specifically for nice long baths and summer sunshine swimming!

Love to all!
rhonda

Lori said...

So.........what is the verdict? How did the labs go? (I'm a little late in reading this, but praying the last few weeks have been hydration therapy FREEEEE!!!!) She looks SO good. SO Beautiful!!! (well, they all are!) And the dryer picture is classic..... ;)

Love you guys!