Blessed Sundays

I hope that this day was a blessing to you and yours. Today was a good day for Kensley. She weighed 9lbs and 8 oz today and she only had three poops, which is great! For all of you who are worried about me being alone, my Mom has come for a visit. She will probably stay for a week or two. Although she can not handle Kensley very well, it is nice to have some company, and someone to ask,"Hey, can you hand me this or that?" Some one recently asked me exactly what the intestinal rehab program will do with Kensley. Here how our days go...
On Mondays we will go to the treatment center to have blood drawn. Kensley has a central line that goes into the veins near her heart. This is the line that we put her intravenous nutrition (TPN) and lab can also draw blood so that she does not have to be stuck every week. On Tuesday we go to clinic and have an evaluation with the team of doctors. Then they make recommendations for changes in the TPN and formula based on her evaluation and the labs. On Wednesday and Thursday, we just stay at home changes diapers-lots of diapers- and eating and sleeping and growing. I stay in touch with the nurse coordinator (Brandi- a real blessing) all week. If anything needs changing or is going wrong with Kensley, she contacts the doctors and we make mid-week changes. On Fridays, the home health nurse comes and we change the central line dressing (NOT A FUN PROCESS). Everyday of the week Kensley has to have TPN primed, prepared and infused. She also has to have her NG (Nasal tube) feeding prepared and put on everyday. So you can see the days are filled with tasks and tubes and medicine and doctors and nursing, but luckily they are also filled with joy and the coos of a precious baby. The weekends are just lonely though. I miss Kaydee and Cooper so much during the week. I think about them constantly and dream about them when I sleep. The weekends seem harder. I want to be home making special weekend breakfast and just hugging them good morning. Yet, I know that these sacrifices will all be worth it, and someday the tubes will be gone and Kensley will be healed. God is that good and we will keep the faith. Thanks to all of you for your prayers and support. Hugs from Heaven, Tana

Prayer requests:
Caed and family as they travel to Omaha for IRP evaluation. Jake as he holds on waiting for a transplant. Kaydee and Cooper as they go to school and go through their days without mama to help them. J. as he worries about me and Kensley, and Kensley as she grows and her body tries desperately to adapt. Please feel free to give me any prayer requests that you need. Pray for each other constantly.